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Relational autonomy in clinical research: Relational considerations of adult participation in clinical research

by Ian J. Pieper

Institution:	Queensland University of Technology
Department:
Degree:
Year:	2022
Keywords:	Clinical Research Ethics; Human Research Ethics; Relational Autonomy; Clinical Research; Human Research Ethics Committee; Institutional Review Board; Consent; Autonomy
Posted:	3/25/2025
Record ID:	2303824
Full text PDF:	https://eprints.qut.edu.au/231386/

Abstract

The requirement for consent to be both informed and voluntary is a keystone of contemporary bioethics. The need for consent before including people in clinical research demonstrates respect for participants. Demonstrating respect goes beyond mere acknowledgment of the right for people to make their own decisions. To be meaningful, consent must promote and support participant self-governance and enable decisions that align with participant values. A relational perspective of autonomy places people within a web of social and cultural histories and influences that frame the concept of respect. A relational approach to consent can create opportunities to promote respect for autonomy.